The IndUS Network e-magazine

World Hemophilia Day

Hemophilia - Blood Related Disease - Awareness

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The World Federation of Hemophilia invites you saying "Be Inspired, Get Involved in Treatment for All.”

What is hemophilia?
This is an inherited (genetic) blood disorder where the clotting factor (a protein required for clotting of blood at the site of bleeding) is either absent completely or present in small amounts.

Types of hemophilia
The Hemophilia A (Factor VIII deficiency) is also called Classic Hemophilia. This is the most common form. Hemophilia B (Factor IX deficiency) is less common and also called Christmas Disease named after the first person detected with the disorder (Stephen Christmas).

Magnitude of the disorder
This is predominantly a “male” disorder. The defect carrying gene is located in the X chromosome and women can be carriers, but are rarely affected by it. Data reveals that there are 18,000 hemophiliacs in the US and 400 babies are born each year with hemophilia, but they may be mild, moderate, or severe sufferers depending upon the amount of the clotting factor that they may have.

Identifying hemophilia
Easy bruising and excessive bleeding even from a minor cut or injury is the main symptom. A mild hemophilia is undetected until in the event of an accident, a tooth extraction, or a surgery.

What is dangerous?
Bleeding can be externally visible like in nose bleeds or external cuts, or bleeding in the mouth etc. Internal bleeding may occur within organs or joints without any obvious injury and initially they remain asymptomatic until bloody urine or a painful, hot, swollen joint becomes evident. If left untreated, may cause permanent damage. More serious is the bleeding in the brain that may occur with a simple bumping of the head or a serious injury. There may be vomiting, weakness, headache or seizure. In any case, treatment must take place at the earliest.

Treatment modes
1. Replacing the clotting factors using human blood (this can carry serious viruses into the patient and so the individuals need to get vaccinated for HIV/AIDS, hepatitis A, B etc.).
2. Using antifibrinolytic medicines like tranexamic acid and aminocaproic acid with replacement therapy that will help to hold the blood clot from breaking.
3. The future may be the gene therapy (elimination of the defective gene).

Word of Caution
The hemophiliacs once detected need regular checks, immunizations, prompt treatment, and precaution with all bleeding or injury-prone activities and ensure they can lead a normal life.

Watch the Video: Hemophilia and Kids: A real life story from You tube

Stop, Stop ... You are asking too much!

Reports say that Japanese, the inventors of Haiku form of poetry, were able to create interesting
Haikus to replace the impersonal computer error messages - especially Microsoft’s errors. Here are few scenarios which you would have experienced and would appreciate the error messages in Haiku form instead of the original form.

Scenario: The program you are using suddently crashes.
Replacement Error message in Haiku form:
Program aborting:
Close all that you have worked on.
You ask far too much.

Stop! Stop! (This line is not part of the Haiku)

Disclaimer: The above content is provided for information and awareness purpose only. It is not prescriptive or suggestive or meant to replaces your qualified physician's advice or consultation.